HELP FINN SUPPORT PRISMA HEALTH CHILDREN’S HOSPITAL!

Warrior Finn was born just four weeks early but it was too early for him. His lungs weren’t working and we quickly found ourselves out of options to save him. The doctors took one last option by putting Finn on a heart and lung bypass machine called ECMO. While on ECMO, Finn suffered multiple strokes.

We hoped and prayed he would be strong enough to fight. The chant heard round the world was “Fight, Finn, fight!” as friends from every continent joined us in our prayers. And fight he did! A miracle happened and Finn continues to be my brave, mighty boy.

We were blown away just weeks later that Finn had developed another life-threatening condition, hydrocephalus. A VP shunt was inserted when he was just five weeks old. The shunt has done its job and managed the abnormal accumulation of cerebrospinal fluid in Finn’s head.

We didn’t know what to expect when we took Finn home from the NICU after 63 days. His brain had sustained a lot of injury from the strokes and hydrocephalus. But as the months and then years steadily crawled ahead, we began to breathe again that we knew the days of our lives ahead and we could handle whatever came our way.

Finn loves to dance, watch Mickey Mouse, play outside, go for car rides and zoom his Hot Wheels. This dapper young man sports a bow tie and hat just about anywhere he goes even with his pajamas. Nothing makes him squeal louder than a new pair of red shoes or a Mickey lovey. Finn loves to sign about space, Halloween, Christmas, birthdays and his big sister.

Another diagnosis

When Finn was 4 years old, that peace was suddenly shattered as Finn was given an epilepsy diagnosis of Lennox-Gastaut Syndrome. The early brain injury led Finn to the door of a devastating form of epilepsy. Finn has fought hard to stay one step ahead but the seizures have caused delays and regressions especially in his speech and motor skills.

EEGs have become a frequent part of Finn’s life. He struggles with all the wires and gauze stuck to his head. Another long EEG at the hospital is just in time for Finn’s 6th birthday at the end of November. To Finn’s delight, we discovered NillyNoggin EEG Caps and ordered a rocket one for him to give a whirl during his EEG. Neatly packed it in our Warrior bag with his new button down pajamas and slippers and ready to become part of his armor.

support Finn’s mission to help children testing for seizures

In honor of Finn’s birthday and all of the other epilepsy warriors out there, we would like to raise funds to cover NillyNoggin EEG Caps that will be donated to help children getting EEG’s at Prisma Health Children’s Hospital here in Columbia, SC, so that other children can have the comfort and style of their own cap during a trying time.

It’s the little things that turn out to be the big things that get you through the times like this.

Will you join Finn and our family in celebrating his 6th birthday with a special gift for our hospital’s warriors?

By making a donation, NillyNoggin EEG Caps will go directly to Prisma Health Children’s Hospital for them to distribute NillyNoggin EEG Caps to patients in their hospital!