UNC Children’s – North Carolina Children’s Hospital created this video showing the NillyNoggin EEG Cap in action after receiving a large donation of NillyNoggin’s!
WHY a NillyNoggin EEG Cap?
This cap takes the EEG from scary to happy! It reduces stress and anxiety, boost confidence, creates meaningful conversation, provides comfort, helps EEG techs with application and reapplication of EEG leads and a can help make a Warrior feel like a rockstar!
Yeah, but WHY else?
Oftentime a child will need to have an Ambulatory EEG (they go home with the wires on their head for days at a time). Ok but what’s the big deal? Well, the wires and the whole look of the EEG can really create some uncomfortable stares. Many individuals living with epilepsy already have self-esteem issues due to the stigma that surrounds epilepsy. Covering up the medical look of the test with a NillyNoggin not only boosts their confidence but also serves as an opportunity to educate about epilepsy as people want to know more about their cap and epilepsy.
“It’s the little things in life that make hospital stays and EEG’s more bearable. Hanna loves her NillyNoggin! It’s soft and keeps all of the cords together in one place. Of course the nurses and techs think it’s the cutest too!” ~ Morgan R. (Mom) while inpatient at UW Health Kids American Family Children’s Hospital
How often are EEG’s done?
Oftentimes, people living with uncontrolled epilepsy get multiple EEG’s a year and often all throughout their lifetime.
Why don’t the Hospitals purchase their own NillyNoggins?
Good question! We have many requests from hospitals across the Nation for NillyNoggin EEG Caps! The bottom line is that oftentimes it is simply not in the Neurology EMU budget to purchase additional items. We certainly do not want this to be the reason that children go without NillyNoggins!
Help us provide a sense of normalcy while going through EEG testing whether in the hospital or during an Ambulatory procedure.
There is an overwhelming amount of silent sadness all over the world from families living with epilepsy. When you live with uncontrolled epilepsy, you are on guard 24 hours a day 7 days a week 365 days a year and many are at a high risk of sudden unexplained death from epilepsy (SUDEP).
By the Way, Did You Know?
In our Nation alone, approximately 3.4 million people have epilepsy and over 470,000 of them are children, of which more than 90,000 of them have severe seizures that cannot be adequately treated.
Epilepsy affects over 2.2 million people in the U.S. and 65 million worldwide.
Some 40 percent of people with epilepsy are severely affected and continue to have seizures despite treatment.
Epilepsy and its treatment can impact quality of life with side effects such as pain, depression, and anxiety.
The mortality rate among people with epilepsy is two to three times higher and the risk of sudden death is 24 times greater – than that of the general population.
The leading non-medical problem confronting people with epilepsy is discrimination in education, employment and social acceptance.
“Let’s spread smiles & hope to those with Epilepsy together! Your generosity means the world to us!” ~Heather and Hannah, Founders of the Hannahtopia Foundation
All NillyNoggin EEG Caps gifted in bulk for hospital EMU’s are distributed as a Variety Pack assortment of patterns and colors and are mailed directly to the hospital.
We cannot guarantee the hospital you choose to send the NillyNoggins to will accept the gift. If this is the case, we will certainly send them to the hospitals that do accept them.
When making a donation, you may be asked for a shipping address, the product will not ship to you, it will ship directly to the hospital of your choice or a hospital on our waiting list.
Purchase must go to children’s hospital, epilepsy monitoring units or outpatient EEG Units. Donated NillyNoggin EEG Caps cannot be sent to a personal home when purchasing Gift-A-NillyNoggin for Hospitals.